Alzheimer's Awareness Month- Understanding, Supporting, and Preparing

January marks Alzheimer’s Awareness Month, a time to raise understanding of Alzheimer’s disease, dementia, and the realities faced by both those living with these conditions and the caregivers who support them. Alzheimer’s disease is the most common cause of dementia, accounting for 60–80% of all dementia diagnoses, and it is not a normal part of aging. Memory loss, confusion, and personality changes are symptoms of a disease process, not inevitable signs of getting older.

Whether you are in Canada or elsewhere around the world, understanding Alzheimer’s is the first step toward compassion, awareness, and support.

Understanding Dementia vs. Alzheimer’s Disease

It is important to clarify that dementia is not a single disease, but an umbrella term describing symptoms caused by disorders affecting the brain. Alzheimer’s disease is a chronic neurodegenerative condition that progressively destroys brain cells, leading to declines in memory, thinking, and behaviour.

By understanding the distinction, we can better support individuals living with Alzheimer’s and other forms of dementia, while recognizing the unique challenges caregivers face.

Key Facts & Figures

Canada (2025):

Approximately 771,939 Canadians are living with dementia.

More than 17 people develop dementia every hour (414 per day).

By 2030, dementia cases in Canada may increase by 65%, and by 2050, the total number of people living with dementia may rise 187%.

Indigenous populations in Canada are projected to see a 273% increase, and Canadians of African ancestry a 507% increase by 2050.

Women make up 61.8% of those living with dementia, and over half of caregivers are women, providing an average of 26 hours of care per week. Roughly equivalent to a part-time job in the beginning stages.

United States (2025 estimates, for context):

Alzheimer’s disease affects millions of Americans, and caregiving responsibilities have similar demographic trends, emphasizing the global impact of this condition.

These statistics highlight the urgent need for awareness, support, and resources for both individuals living with Alzheimer’s and their caregivers.

Progression Stages & Symptoms

Understanding the stages of Alzheimer’s helps caregivers and loved ones prepare emotionally, mentally, and practically for each phase.

Early Stage (Mild Impairment):

Can occur at any age.

Symptoms: forgetfulness, difficulty learning new things, trouble following conversations, poor concentration (without ADHD or other conditions that cause poor concentration), mood changes such as apathy or depression, and mild coordination problems.

Often subtle and sometimes hidden by the person experiencing them.

Middle Stage (Moderate Decline):

Noticeable deterioration in memory, thinking, and awareness.

Caregivers’ involvement becomes essential.

Individuals may still recognize people and their environment, but assistance with daily tasks becomes necessary.

Discussions about long-term care and support programs often begin at this stage.

In some cases, the individual may make up words to fill in for those lost.

Late Stage (Advanced/Severe):

Significant memory and cognitive impairment.

Verbal communication is often lost; nonverbal communication becomes critical.

Complete dependence for daily living: eating, walking, toileting, and hygiene.

Caregivers should seek support for their own well-being to maintain quality care.

End-of-Life Stage:

Focus is on comfort and palliative care.

Individuals require 24-hour care, with attention to physical, emotional, and spiritual needs.

Caregivers should prepare for progressive losses and seek support.

Physical changes may include fragile skin, circulation issues, refusal to eat, and extreme exhaustion.

Families often experience multiple “goodbyes” as the condition fluctuates before passing.

Emotional Insight:

Something I tell others who are navigating this experience. I spent many of the stages grieving the loss of the person in the previous stage of the disease. This is a very emotional and difficult time. Your feelings are valid, and so is your exhaustion. Please seek outside help whenever possible.

“With Alzheimer’s, you may mourn the person in stages. By the time they pass, much of the grief has already been experienced, but awareness and support can help navigate this emotional journey.”

Resources & Getting Help

If you or a loved one may have Alzheimer’s or another form of dementia, reach out for guidance and support:

Canada: Alzheimer Society of Canada — 1-800-616-8816

United States: Alzheimer’s Association — 1-800-272-3900

Contact your family doctor or primary care physician for additional support and evaluation.

For those who want to learn how to be a better ally for someone living with Alzheimer’s or their caregivers, we offer a FREE Ally Guide, available for download directly from your inbox at the bottom of this blog.

Download the Ally Guide for practical tips to support people with Alzheimer’s and their caregivers. Keep it for yourself or share it with others who want to help.

Final Thoughts

Alzheimer’s Awareness Month is a time to educate, empathize, and empower. Understanding the progression, recognizing the symptoms, and knowing where to find support are crucial for improving the quality of life for individuals living with Alzheimer’s and their caregivers.

By sharing knowledge and promoting awareness, we can reduce stigma, provide compassionate care, and help create supportive communities for those affected by Alzheimer’s disease and other forms of dementia.

Sources

Alzheimer's Society of Canada- Alzheimer Society of Canada

Alzheimer's Association- Alzheimer's Facts and Figures Report | Alzheimer's Association

Statistics Canada- Alzheimer’s Awareness Month - Statistics Canada

Lived experience with my now deceased grandmother.

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